Forgot to mention earlier that today I received a letter (and call) from the Genetics Councling place I'm dealing with. During my initial consultation I was told that the favored model (of four) indicated 3.9% risk of having the BRCA1 or BRCA2 gene mutation. But one of the models indicated a risk as high as 7.8% - still not high at all; in fact, 10% used to be their low level threshold. But during the course of the conversation that day - they discovered that I had multiple tumors, and while they said it would increase my odds of having the mution to well over the 10% threshold (and therefore did recommend that I proceed with the testing if I was comfortable with all of the implications) - I certainly wasn't expecting the 3.9% model to jump up to 51%. And none of the models used took into account my cousin, who had a double mastectomy (with reconstruction) the day after I had my surgery - she too had multiple tumors.
Since my cousin and I found out about our cancers at the same time, neither of us expected to be very high risk because the only person in our family who's had cancer was our grandmother; all of her daughters have been fine. Seems funny - before I had cancer I wasn't high risk at all. In fact, I kinda felt like my case wasn't taken too seriously because I was low risk, and relatively young - everyone thought it would be nothing. Guess we all thought wrong.
Since my cousin and I found out about our cancers at the same time, neither of us expected to be very high risk because the only person in our family who's had cancer was our grandmother; all of her daughters have been fine. Seems funny - before I had cancer I wasn't high risk at all. In fact, I kinda felt like my case wasn't taken too seriously because I was low risk, and relatively young - everyone thought it would be nothing. Guess we all thought wrong.
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